Useful ResourcesOrganisations who developed this guideSpinal Muscular Atrophy UK www.smauk.org.ukCure SMA www.curesma.orgSMA Europe www.sma-europe.euMuscular Dystrophy UK www.musculardystrophyuk.orgTREAT-NMD Alliance www.treat-nmd.orgPreviousEthics and ChoicesNextAppendix 1